Caring for a Baby With Cerebral Palsy
"Some babies with cerebral palsy have difficulties swallowing and can aspirate, the information contained herein does not create a doctor-patient relationship. Those in cerebral palsy relationships not only date, they find love, start families, and live happily. As a child with Cerebral Palsy grows into an adult, the world of dating may seem to Finding love, starting families and living happily ever after with others, is one way to help a young person overcome confidence issues. PDF | The implications of caring for a child with cerebral palsy (CP) are considerable, and parents available until 12 months after publication. levels of stress and depression and lower quality of life than parents of healthy.
But parents are often the first to notice that their baby does not have the abilities and skills that are common in other children in the same age group. These developmental delays can be early signs of cerebral palsy.
Even when the condition is present at birth, the signs of cerebral palsy may not be noticed until a child is 1 to 3 years old. How is it treated? Even though cerebral palsy can't be cured, you and your child can do things to help deal with symptoms, prevent problems, and make the most of your child's abilities. Physiotherapy is one of the most important treatments. Medicines, surgery, and special equipment such as a walker can also help. What can you do to cope?
Meeting the daily needs of a family member with cerebral palsy isn't easy. If your child has cerebral palsy, seek family and community support. It may help to join a support group or talk with other parents who have a child with special needs, so you don't feel alone.
You may also find counselling useful. It may help you understand and deal with the wide range of emotions you may feel. Your child will need help too. Providing emotional support for your child can help him or her cope with having cerebral palsy.
Learning that your child has cerebral palsy isn't easy, and raising a child who has it can be hard. But the more you know, the better you can care for and provide for your child. Health Tools Health Tools help you make wise health decisions or take action to improve your health.
Actionsets are designed to help people take an active role in managing a health condition. In many cases, the exact cause isn't known. The damage or abnormality may occur during pregnancy or birth or within the first 2 to 3 years of life. Possible causes of CP during pregnancy or birth can include genetic problems, infections or health problems in the mother or baby during pregnancy, or problems related to labour and delivery.
Health problems in a newborn, such as untreated low blood sugar, can also cause brain damage that leads to CP. Possible causes of CP related to an early birth premature birth are related to the brain's development. For example, babies born too early are at risk for bleeding in the brain. Possible causes of CP within the first 2 or 3 years of life are usually related to brain damage from a serious illness, injury, or lack of oxygen to the brain.
Symptoms When cerebral palsy CP is severe, signs are often noticed at birth or shortly after birth. But some early signs of severe CP vary depending on the specific type of CP. Common signs of severe CP that may be noticed shortly after birth include: Problems sucking and swallowing.
Often the baby's body is either very relaxed and floppy or very stiff. Doctors and parents may not see that a baby's movements are unusual until the movements become more obvious as the baby grows.
Signs that occur over time Some problems related to CP become more clear over time. Or they may develop as a child grows. Smaller muscles in the affected arms or legs.
Nervous system problems prevent movement in the affected arms and legs.
Not being active affects how the muscles grow. Some people who have CP feel pain when touched lightly. Even everyday activities, such as brushing teeth, may hurt. Abnormal sensations can also make it hard to identify common objects by touch. Drooling is common when facial and throat muscles are affected. Drooling irritates the skin, particularly around the mouth, chin, and chest.
Children who have trouble brushing their teeth have a greater risk of getting cavities and gum disease gingivitis. Seizure medicines may also lead to gum disease. Falls and other injuries are a risk, depending on muscle control, joint stiffness, and general physical strength.
And CP-related seizures can cause injuries. What Happens All people who have cerebral palsy CP have some problems with body movement and posture. But many babies don't show signs of CP at birth.
Parents and caregivers may notice the first signs of CP.
For example, the baby may not roll over, sit, crawl, or walk at the expected ages. Signs of CP may become more obvious as the child grows.Parents with Cerebral Palsy - Documentary
Some developmental problems may not appear until after a baby's first year. The brain injury that causes CP doesn't get worse over time.
But its effects can appear, change, or become more severe as the child gets older. How CP may affect your child How much a child is able to move around and do things depends on the type of CP the child has and how much of his or her body is affected. The way CP affects a child also depends on the child's level of intellectual disabilityif any, and whether he or she has other complications or other medical conditions.
Most people who have CP have a type of spastic cerebral palsy. This can affect the whole body but may only affect parts of the body in some children.
For example, a child with spastic cerebral palsy may have symptoms mostly in one leg or on one side of the body. Most children usually learn ways to adapt to their movement problems, like using special devices and equipment to move around.
Total body cerebral palsy causes the most severe problems. Many of those affected are not able to take care of themselves, either because of severe physical disabilities or intellectual disability. But some people can live on their own with the help of family members, health care aides, or both. Other medical conditions, such as vision or hearing problems, are often associated with CP. Sometimes these conditions are known right away.
In other cases, they aren't found until a child gets older. Adults with CP are at risk for heart and lung disease. For example, severe CP causes problems with eating. If food is inhaled into the lungs, the risk of lung infection pneumonia increases. Living with CP Just like people who have normal physical development, people who have CP have social and emotional concerns throughout their lives. Because their physical limitations may add to these concerns, people who have CP need the awareness and consideration of others.
Most adults with the mild or moderate form—and some with the severe form—live independently and have jobs. Others live and work with some level of assistance. Opportunities for independent living and employment for adults with CP have improved, thanks to better home support services and advances in technology, such as computers to assist with speech, powered wheelchairs, and other devices. What Increases Your Risk Risk factors before birth Babies born to teen mothers or to mothers age 35 and older have a higher risk for cerebral palsy CP.
Also, a baby's risk for developing a brain abnormality or injury that leads to CP increases when the mother has certain problems during her pregnancy. These problems may include: Infections, such as rubellacytomegalovirus infection CMVchorioamnionitis, and toxoplasmosis. Exposure to certain medicines, such as thyroid hormones, estrogen, or methotrexate.
Half of cerebral palsy cases have no known cause. This neurological disorder affects the brain's ability to control body movement, muscle coordination, and posture. Cerebral palsy affects every child differently, depending on the extent of the brain injury.
Having Children When You Have Cerebral Palsy | Cerebral Palsy Guidance
Because low muscle tone makes it more difficult for your infant to hold up his head, you may need to provide extra support while nursing or giving a bottle and you'll need to do this for a longer-than-normal period of time.
When your baby is ready to try solidsan adaptive seating device can provide the head and body support your baby needs. If your baby has problems swallowing, you may need to add thickening agents to bottles of breast milk or formula. This agent may be recommended if your baby has gastroesophageal reflux disease, or GERD, a common problem for infants with cerebral palsy. A baby with severe cerebral palsy may temporarily need a gastrostomy, or G-tube, to ensure that she gets the nutrition necessary to thrive and develop.
If your baby has reflux, your doctor may recommend using a wedge cushion in his crib to raise his head when he sleeps. This can keep stomach contents from moving backward into his esophagus. Spruce up the nursery with decor from Shop Parents. Cerebral palsy affects each child's motor skills differently.
Having Children When You Have Cerebral Palsy
Some children get around just fine unassisted; others move with the aid of a walker; still others may need the help of a wheelchair.
You should expect your baby to reach certain milestones like rolling over, crawlingwalkingand talking later than typical peers do -- if she reaches them at all. Your baby should be referred to early intervention services, such as physical, occupational, and speech-language therapies, as soon as possible following her diagnosis. States are required to provide these services for free to eligible infants and toddlers up to age 3 through the Individuals with Disabilities Education Act.